BOLD BREAKTHROUGHS 2026 CSNK2A1 Foundation "Move Your Way" Challenge

About the race

JOIN US THIS OCTOBER! Bold Breakthroughs Month | October 1–31, 2026 Join our global Okur-Chung Neurodevelopmental Syndrome (OCNDS) community as we come together throughout the month of October to raise awareness and fund research that brings us closer to better treatments. Our Community Celebration Weekend is October 10–11, 2026, when families and supporters around the world will share their photos, stories, and activities online. Can't participate that weekend? No problem! Complete your challenge anytime during October and celebrate with us. Register by September 18, 2026, to help ensure your event T-shirt arrives before Celebration Weekend. LAST YEAR, YOU MADE A BREAKTHROUGH POSSIBLE Because of our incredible community, last year's Bold Breakthroughs campaign raised enough to fund a $50,000 pilot research grant. This year, we're working together to fund the next one. This year, we set out to do it again and we reached that goal. Now we're stretching to $60,000. Every dollar beyond $50,000 helps us build on this investment by funding the additional research, data, tools, and next steps that can move promising discoveries forward. Every registration, every donation, and every shared story helps move us forward. DO I HAVE TO RUN? Absolutely not! Bold Breakthroughs is about moving your way—not running a race. Choose an activity that fits your abilities, interests, and schedule. You can: Run Walk Roll (wheelchair, walker, scooter, stroller) Ride a bike Roller skate or rollerblade Swim Hike Dance Play golf Walk your dog Do 100 push-ups Create your own challenge Whether you move for five minutes or five miles, every step helps advance OCNDS research. THIS YEAR'S THEME: BOLD BREAKTHROUGHS WHY PARTICIPATE? WHY DONATE? OCNDS is a lifelong neurodevelopmental condition that significantly impacts the lives of affected individuals and their families. This year, we're raising $50,000 to support research focused on the priorities identified by families and researchers during our recent scientific convening, including: Sleep Speech and language Anxiety Intellectual disability Gastrointestinal health Drug repurposing Gene therapy feasibility studies Your support helps turn these priorities into meaningful scientific progress. HOW TO PARTICIPATE Step 1 Register as an individual or create a team. Be sure to enter your T-shirt size and mailing address. (don't want a shirt, no problem, see below) *Register by September 18 to help ensure your T-shirt arrives before Community Celebration Weekend. Step 2 Choose your own challenge and complete it anytime during October. Step 3 Invite your friends, family, coworkers, and neighbors to join your team or support your fundraiser. Step 4 Share your photos and videos during Community Celebration Weekend (October 10–11) or anytime throughout October to inspire others around the world. COMMUNITY AWARDS 🏆 Top Fundraiser 📱 Loudest Family or Team on Social Media 📸 Most Creative Bold Breakthroughs Photo REGISTRATION INFORMATION Adults: $30 Children (ages 2–18): $18 Each registration includes: One commemorative Bold Breakthroughs event T-shirt* One digital race bib *Register by September 18 to help ensure your shirt arrives before Community Celebration Weekend. Don't need another T-shirt? During registration, you can select "No T-shirt." The value of your shirt will stay with the Foundation to support OCNDS research.

Race information supplied by the organizer through RunSignUp.

Events & distances

• BOLD BREAKTHROUGHS Move Your Way Challenge

  1 Miles

  $30 including processing fees

  Saturday, October 10, 2026
  View registration